Eliana Cohen is daughter of Shani Levi Cohen and Ariel Cohen from Miami, Florida. Eliana, wasn’t hitting her developmental milestones. At age 1, she was misdiagnosed with hypotonia -reduced muscle tone- but when physical therapy wasn’t improving her condition, her family went back to a neurologist to find answers. The Cohens finally discovered that Eliana has an incredibly rare condition called spinal muscular atrophy (SMA) type 2, that will keep her from being able to walk and could significantly reduce her lifespan. There’s a new FDA-approved “miracle drug” called Zolgensma that could help this sweet girl lead a healthy life. A one-time transfusion helps deliver the missing cells children with SMA Type 2 lack but the drug has to be administered before the age of 2. Unfortunately, the Cohens’ insurance company won’t pay for the drug, which costs $2.2 million, a jaw-dropping amount. 

The family miraculously raised the money but now requires your prayers for it to work. Do you want to save a life? If you answered yes, find out more here: https://thechesedfund.com/esther/save-eliana




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